The language we use is crucial to the wider dissemination of the best care possible for patients nearing the end of life, according to Ira Byock, MD, one of the country’s leading voices in palliative care practice and advocacy.
Advance care planning and end-of-life care are hot topics showing up in publications such as the New York Times, The Atlantic, and numerous thought provoking blogs and podcasts. Check out the links below to learn more.
Quality Indicators for Older Adults: Preventing Unintended Harms
Ventura County doctors pioneer Medcordance,
a groundbreaking electronic POLSTRegistry
Language Is a Vital Tool in Maximizing Palliative Care
The Clinical Frailty Scale can help you decide when it may be time to start considering end of life measures.
Go Wish is a simple card game created by the Coda Alliance to help people identify their end-of-life priorities. Players sort cards with goals like "To be able to help others", "To be free from pain", and "Not being connected to machines" into high and low priority categories. Playing Go Wish with loved ones can clarify what you would like to occur if you are confronted by a terminal condition, and bring some order to a life phase which can be overwhelming.
Media & Tools
The Medcordance is beginning a micro-launch at select healthcare institutions in Ventura County. Created by a team of Ventura County physicians led by Carlo Reyes, Medcordance will be the first registry of its kind certified by Medicare for QCDR reporting under MACRA/MIPS. ePOLST forms uploaded to the registry will be viewable in all participating medical centers, ensuring that patient wishes are communicated quickly between facilities. Updates about this groundbreaking local program will be posted here.
End Game is a powerful new documentary which follows two patients - one who has chosen hospice care and one who has chosen hospital care - through their end-of-life journies. End Game was an official selection at the 2018 Sundance Film Festival.